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Use este identificador para citar o ir al link de este elemento: http://hdl.handle.net/1843/83346
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Campo DCValorIdioma
dc.creatorSoraya de Mattos Camargo Grossmannpt_BR
dc.creatorMariela Dutra Gontijo de Mourapt_BR
dc.creatorMichelle Danielle Porto Matiaspt_BR
dc.creatorSaul Martins de Paivapt_BR
dc.creatorRicardo Alves de Mesquitapt_BR
dc.date.accessioned2025-07-04T20:32:39Z-
dc.date.available2025-07-04T20:32:39Z-
dc.date.issued2018-07-10-
dc.citation.volume17pt_BR
dc.citation.spage1pt_BR
dc.citation.epage8pt_BR
dc.identifier.doihttp://dx.doi.org/10.20396/bjos.v17i0.8652908pt_BR
dc.identifier.issn1677-3225pt_BR
dc.identifier.urihttp://hdl.handle.net/1843/83346-
dc.description.resumoAim: The aim of this study was to determine the response rate of the SF-36 quality of life questionnaire sent and received by mail and over a social network to caregivers of individuals with epidermolysis bullosa (EB) in Brazil. Methods: All volunteers were first-degree relatives of patients with EB that directly spent time helping them with their basic activities of daily living. A maximum of two caregivers per patient could answer the questionnaire. Volunteers were divided into two groups: for group 1, questionnaires were sent to 53 members of a support association for the disease by mail, and for group 2, 798 members of the Facebook™ page of friends and relatives of patients with EB were invited to participate using an access link to Google Drive™ to gain access to the questionnaire. The data from both groups were analyzed 150 days after the start the study. Descriptive analysis was performed by EpiInfo8 and the return of questionnaires was evaluated according to age, sex, and time of return using the Chi-squared and Fisher’s exact test. Results: After 150 days, 30 questionnaires were returned, 17 (56.7%) of which from group 1 and 13 (43.3%) from group 2. Approximately 12 questionnaires were returned by mail and 11 over the social network. Conclusions: The data collection of the SF-36 quality of life questionnaire from caregivers of individuals with EB over a social network seems to be efficient mainly when it is necessary to collect results within a short timeframe, highlighting the importance of social networks as a means for conducting this type of research. However, in our study, the most efficient method was distributing the questionnaires by mail.Keywords: Epidermolysis bullosa. Electronic mail. Quality of life. Social support. Surveys and questionnaires.pt_BR
dc.format.mimetypepdfpt_BR
dc.languageengpt_BR
dc.publisherUniversidade Federal de Minas Geraispt_BR
dc.publisher.countryBrasilpt_BR
dc.publisher.departmentFAO - DEPARTAMENTO DE CLÍNICApt_BR
dc.publisher.departmentFAO - DEPARTAMENTO DE ODONTOPEDIATRIA E ORTODONTIApt_BR
dc.publisher.initialsUFMGpt_BR
dc.relation.ispartofBrazilian Journal of Oral Sciencespt_BR
dc.rightsAcesso Abertopt_BR
dc.subjectEpidermolysis bullosapt_BR
dc.subjectElectronic mailpt_BR
dc.subjectQuality of lifept_BR
dc.subjectSocial supportpt_BR
dc.subjectSurveys and questionnairespt_BR
dc.subject.otherEpidermolysis bullosapt_BR
dc.subject.otherElectronic mailpt_BR
dc.subject.otherQuality of lifept_BR
dc.subject.otherSocial supportpt_BR
dc.subject.otherSurveys and questionnairespt_BR
dc.subject.otherCaregiverspt_BR
dc.subject.otherSocial networkingpt_BR
dc.titleThe use of social networks in scientific research with questionnairespt_BR
dc.typeArtigo de Periódicopt_BR
dc.url.externahttps://periodicos.sbu.unicamp.br/ojs/index.php/bjos/article/view/8652908pt_BR
dc.identifier.orcidhttps://orcid.org/0000-0002-8920-3853pt_BR
dc.identifier.orcidhttps://orcid.org/0000-0003-3576-3457pt_BR
dc.identifier.orcidhttps://orcid.org/0000-0002-8598-4170pt_BR
dc.identifier.orcidhttps://orcid.org/0000-0002-3968-1638pt_BR
dc.identifier.orcidhttps://orcid.org/0000-0003-3207-4007pt_BR
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