Desafios do processo da participação em indivíduos com paralisia cerebral durante a transição da infância para a vida adulta

Abstract

The cerebral palsy (CP) is one of the most disabling conditions in childhood, its consequences follows the individual during all his life, having the potential to generate a relevant impairment in the participation process. The transition from childhood to adulthood is a complex period, the individuals assumes new social holes and more complex life situations, thus for individuals with CP this process can be more challenging. Therefore, this work aims to investigate the challenges of the participation process in individuals with CP during the transition from childhood to the adulthood, through a bibliographic review. Therefore, a search was performed on Pubmed, Scielo, Lilacs, Cochrane and Pedro database. Studies from the last decade were included, without any language restriction, with children, teenagers and young adults who had a clinic diagnosys of CP. The search on the referred database returned 204 studies, from which 197 were discarded and seven were selected for this work. The seven studies selected reported results from six of nine participation domains of ICF and the participation in general terms, considering the grouping of the several domains. The most challenging domains were domestic life – housing, interactions and relationships – intimate relashionships, major life áreas – education and employment. It was found that the autonomy in participation in general was attained by individuals with CP after 27 years old, what indicates that those individuals attained higher levels of participation more belatedly and slowly when compared with peers. Individuals clinic charactheristics like motor function, manual hability, intellectual disability, behaviour disorders and epilepsy are considered predictives of future participation on its several domains. The professionals involved in the management of individuals with CP should be prepared for a personalized approach and be alert to all these issues since the early childhood. Future studies are necessary to continue the investigation and allow that those individuals reachs adequate levels of participation, be more integrated into society, have more opportunities and quality of life.