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Please use this identifier to cite or link to this item: http://hdl.handle.net/1843/65212
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dc.creatorMarina Junqueira Airoldipt_BR
dc.creatorBeatriz Santos Vieirapt_BR
dc.creatorRachel Teplickypt_BR
dc.creatorDeborah Chalfunpt_BR
dc.creatorRafael Boonfimpt_BR
dc.creatorMarisa Cotta Mancinipt_BR
dc.creatorPeter Rosenbaumpt_BR
dc.creatorMarina de Brito Brandaopt_BR
dc.date.accessioned2024-03-04T22:25:53Z-
dc.date.available2024-03-04T22:25:53Z-
dc.date.issued2021-07-19-
dc.citation.volume2pt_BR
dc.citation.spage1pt_BR
dc.citation.epage6pt_BR
dc.identifier.doihttps://doi.org/10.3389/fresc.2021.709983pt_BR
dc.identifier.issn2673-6861pt_BR
dc.identifier.urihttp://hdl.handle.net/1843/65212-
dc.description.resumoKnowledge translation (KT) is gaining attention in the pediatric rehabilitation field. Nossa Casa Institute is the first organization in Brazil aiming to foster cerebral palsy (CP) awareness and empower families by discussing reliable information. This study aims to build a network where individuals with CP and their families, researchers, health care professionals, and services can communicate and share experiences. In this article, we describe the experience of planning and conducting an educational and interactive online workshop to foster principles of family-centered service (FCS). We used the action cycle from the Knowledge to Action (KTA) framework to describe and ground the proposed activities. In Module 1, “Challenges and barriers to incorporate family-centered principles,” we discussed the historical perspective, main principles, and challenges related to FCS implementation. Module 2, “What is my contribution to the family-centered service?” was aimed to foster strategies to improve the implementation of principles of FCS in the care of children with disabilities. In Module 3, “What can we do together?” the groups presented their ideas and suggestions. This interactive and educational workshop was an opportunity for Nossa Casa Institute to disseminate accessible and reliable information regarding FCS and to empower families to participate actively in the rehabilitation process and advocate for the best provision of care for their children. Future actions of Nossa Casa Institute include the coordination of a national conference to connect families, individuals with CP, healthcare and rehabilitation professionals, and researchers. There is also a need, and opportunity, for formal evaluation of these KT activities.pt_BR
dc.format.mimetypepdfpt_BR
dc.languageengpt_BR
dc.publisherUniversidade Federal de Minas Geraispt_BR
dc.publisher.countryBrasilpt_BR
dc.publisher.departmentEEF - DEPARTAMENTO DE TERAPIA OCUPACIONALpt_BR
dc.publisher.departmentEEFFTO - ESCOLA DE EDUCAÇÃO FISICA, FISIOTERAPIA E TERAPIA OCUPACIONALpt_BR
dc.publisher.initialsUFMGpt_BR
dc.relation.ispartofFrontiers in Rehabilitation Sciencespt_BR
dc.rightsAcesso Abertopt_BR
dc.subjectKnowledge translationpt_BR
dc.subjectFamily-centeredpt_BR
dc.subjectAction cyclept_BR
dc.subjectPediatric rehabilitationpt_BR
dc.subjectCerebral palsypt_BR
dc.subject.otherPediatriapt_BR
dc.subject.otherParalisia Cerebralpt_BR
dc.subject.otherCiência Translacional Biomédicapt_BR
dc.titleInformation and Empowerment of Families of Children With Cerebral Palsy in Brazil: The Knowledge Translation Role of Nossa Casa Institutept_BR
dc.typeArtigo de Periódicopt_BR
dc.url.externahttps://www.frontiersin.org/articles/10.3389/fresc.2021.709983/fullpt_BR
dc.identifier.orcidhttps://orcid.org/0000-0001-5192-0868pt_BR
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