Access to oral health care services for individuals with rare genetic diseases affecting skeletal development
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Universidade Federal de Minas Gerais
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Artigo de periódico
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Membros da banca
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Objective: To identify factors associated with oral health care services for indi-viduals with and without rare genetic diseases.Materials and Method: A cross-sectional study was undertaken, with 140 indi-viduals paired by sex and age (70 with rare genetic diseases and 70 without), agedbetween 3 and 27 years, and their parents. The sample was selected from two ref-erence hospitals for patients with rare genetic diseases in southeastern Brazil.The parents completed a questionnaire on individual aspects and their child’smedical/dental history. Participants who did and did not suffer from rare geneticdiseases were examined for dental caries, malocclusion, dental anomalies, andoral hygiene. The theoretical model Directed Acyclic Graphs (DAG) was used toidentify possible confounding variables in the association between rare diseasesand access to dental care. Descriptive analyses and non-matched and matchedlogistic regression models (p < 0.05) were carried out.Results: The chance of individuals without rare genetic disease having accessto oral health care service was 5.32 times higher (95% CI 2.35–12.01) than thosewith such conditions. Individuals who had not suffered upper respiratory tractinfections had a 3.16 times greater chance of being in the group with access tooral health care service (95% CI 1.45–6.90).Conclusion: Individuals with no rare genetic diseases and no history of upperrespiratory tract infections had a greater chance of belonging to the group of indi-viduals with access to a dental service. Individuals with rare genetic diseases haveless access to oral health care.
Abstract
Assunto
Health services accessibility, Rare diseases, Mouth diseases, Health of the disabled
Palavras-chave
Dental care for the disabled, Health service accessibility, Mucopolysaccharidoses, Osteogenesis imperfecta, Rare genetic diseases
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https://onlinelibrary.wiley.com/doi/epdf/10.1111/scd.12639