Informação de saúde sobre a síndrome de Down: uma análise de conteúdo dos vídeos do youtube

Abstract

Introduction: Down syndrome (DS) is the most common chromosomal alteration in the world, characterized by several alterations in the structures and functions of the body. With the advancement of medicine, the life expectancy of people with DS has increased and this has generated more search for information. YouTube has become an information resource both for health professionals, students, patients with DS and their families, and with that, the need arose to assess the quality of information transmitted and consumed daily. However, so far, no studies have been found that critically analyze the quality and reliability of videos on Youtube related to DS. Objective: To identify characteristics of the most accessed videos on YouTube in the Portuguese-Brazilian language about DS and to analyze the content, reliability and quality of information in the videos. Methodology: This is a cross-sectional study, carried out on the YouTube website by two independent examiners in 2022, using the keywords “Down Syndrome” ordered by the number of views of the videos. Videos that did not have SD-related content or duplicate videos were excluded. Interaction data and characteristics of the content of the videos were collected. To assess the reliability and quality of the informative videos, the modified Discern and the global quality index were used. Results: 148 videos were included, 72 classified as experience videos and 76 as informative. Classification, characteristics and prognosis was the main topic addressed and only two videos mentioned assistive technology. No videos were found about instruments or forms of physiotherapeutic evaluation. Most informative videos were presented by health professionals (56.5%) and in lecture or presentation format (47.7%). The mean score of the DS-related informational videos was 3.1 on DISCERN and the overall quality score was of moderate quality. Conclusion: YouTube presented a large number of experience and informative videos about DS in Brazilian Portuguese. The informational videos presented content of moderate reliability and overall quality. Therefore, it is necessary to include information on scientific evidence, as a strategy to facilitate and promote the translation of knowledge.