The impact of the oral condition of children with sickle cell disease on family quality of life

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dc.creatorMaria Luiza da Matta Felisberto Fernandes
dc.creatorIchiro Kawachi
dc.creatorPatrícia Corrêa-Faria
dc.creatorSaul Martins de Paiva
dc.creatorIsabela Almeida Pordeus
dc.date.accessioned2023-05-11T20:03:06Z
dc.date.accessioned2025-09-08T23:30:23Z
dc.date.available2023-05-11T20:03:06Z
dc.date.issued2016
dc.description.sponsorshipCNPq - Conselho Nacional de Desenvolvimento Científico e Tecnológico
dc.description.sponsorshipCAPES - Coordenação de Aperfeiçoamento de Pessoal de Nível Superior
dc.description.sponsorshipOutra Agência
dc.format.mimetypepdf
dc.identifier.doihttps://doi.org/10.1590/1807-3107BOR-2016.vol30.0021
dc.identifier.issn1807-3107
dc.identifier.urihttps://hdl.handle.net/1843/53121
dc.languageeng
dc.publisherUniversidade Federal de Minas Gerais
dc.rightsAcesso Aberto
dc.subjectAnemia, sickle cell
dc.subjectQuality of life
dc.subjectParents
dc.subject.otherAnemia, sickle cell
dc.subject.otherQuality of life
dc.subject.otherParents
dc.titleThe impact of the oral condition of children with sickle cell disease on family quality of life
dc.typeArtigo de periódico
local.citation.epage7
local.citation.issue1
local.citation.spage1
local.citation.volume30
local.description.resumoThe aim of this study was to assess the impact of oral conditions of children with sickle cell disease (SCD) on their parents’ quality of life (QoL). A cross-sectional study was performed with parents of outpatients suffering from SCD at a hematology referral center in Belo Horizonte, MG. A qualified dentist performed an intraoral exam. The Family Impact Scale (FIS) was used to assess the parents’ perception of QoL. The parents answered some questions regarding sociodemographic and medical information about their children. The dmft/DMFT score, DAI, gum bleeding and SCD severity were evaluated in terms of their impacts on the overall mean FIS scores and subscale scores. The chance of more frequent impacts was greater in parents of adolescents (OR = 2.04; 95%CI = 1.2, 3.4) than of younger children. Dental caries (dmft/DMFT ≥ 1) had a negative impact on the QoL of parents of younger children and adolescents (p < 0.05 and p < 0.01, respectively). Among the parents of younger children, dental caries and SCD severity significantly affected the subscales for parental activities (PA) and parental emotions (PE) (p < 0.01, p < 0.05, respectively). Among parents of adolescents, dental caries (DMFT) and severe malocclusion adversely affected the PE and PA subscales (p < 0.01, p < 0.05, respectively). SCD severity affected the overall FIS score among young children’s parents (p < 0.05). In conclusion, dental caries, age and SCD severity were associated with a negative impact on the QoL of parents of children with SCD.
local.publisher.countryBrasil
local.publisher.departmentFAO - DEPARTAMENTO DE ODONTOPEDIATRIA E ORTODONTIA
local.publisher.initialsUFMG
local.url.externahttps://www.scielo.br/j/bor/a/fwgCMkNSw7VLm6wBTgKnpvb

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